The European Social Insurance Platform (ESIP) welcomes the establishment of the European Health Data Space (EHDS) and puts forward a set of key messages in light of the ongoing institutional negotiations.
We endorse the clear distinction between primary and secondary use of health data and accordingly the establishment of two separate infrastructures and a twofold governance mechanism where access is granted by national competent authorities, connected through an EU infrastructure.
According to the current, broad definition, social security institutions are to be considered data holders of medical administrative data. It is important to highlight that social security institutions are also key data users of health data to support decision-making around the provision of healthcare.
In this context, we recommend to:
Find here our key messages towards the establishment of the EHDS.